Jemma has been doing a lot of sleeping. She doesn't even have energy to play. She doesn't want to do puzzles, read stories, dance, go outside or any activities. Occasionally she will color and sew. She does want to sleep and eat.
Last night was a sleepless night for my husband and I as we were worried about Jemma. For much of the day on Sunday she complained of a stomach ache. She has had several lately due to the amount of food she has been consuming. Normally they come and go throughout the day in accordance with eating and bowel movements, but yesterday the stomach ache seemed more constant. I wasn't sure if it was due to the two bratwurst and hamburger she ate on Saturday, or due to a bacteria infection. Luckily it is looking like the stomach ache was due to food.
I'm happy that today her steroid dose was reduced from 7 mg per day down to 3 mg per day. Over the next nine days it will gradually be reduced to 0. Her attitude has been decent, but she hasn't smiled nearly as much as normal. I'm optimistic that this reduction will lead to a happier, more active little girl.