I'm a bit nervous about the next two months. In the hospital today we shared a room with another little girl with Leukemia. She is one year younger than Jemma and just finishing up Phase 2A which is the phase Jemma began today. Her mother said it was very difficult. Her daughter needed to eat every hour and didn't want to do anything except watch television all month. In addition, her attitude was difficult as she had symptoms of "roid rage" throughout the month.
Jemma went in today for her last scheduled bone marrow biopsy and began steroid treatment. So far she has had nine lumbar punctures and six bone marrow biopsies. There are still two lumbar punctures left to go which are scheduled in Phase 2B. Phase 2A is similar to Phase 1A which was the very first part of her treatment.
The little girl we shared a room with was in the hospital because of a fever she had several days ago. A fever is a very common way to end Phase 2A. I know the constant eating and attitude will be difficult, but fevers are what scare me. However, every kid is different in the way their treatment goes. Some get fevers and some don't. I guess I will just have to deal with it if it happens, but hopefully it won't.
pretend she has Leukemia a few weeks ago her attitude has been much better. Perhaps deciding she didn't want Leukemia forced her to seriously think about all the good and bad parts of Leukemia. Before I think she only considered the good.
Anyway, Jemma enjoyed playing games with her while recovering from anesthesia. I still feel it is very important for her to come to the hospital on a regular basis. Today she got to see Jemma getting weighed, measured, having her temperature and blood pressure checked, getting examined by the doctors, going to sleep after receiving anesthesia and recovering later. I hope seeing what actually goes on will remind her of how difficult Leukemia is and help her to find some sympathy in her heart.