Monday, October 15, 2012
Leukemia - How is Jemma? - Day 120
We made it home Sunday morning after four nights in the hospital. While there Jemma received 14 hours of hydrating fluid, a lumbar puncture, 24 hours of iv chemotherapy in conjunction with more high volume fluid, and followed by 48 hours of high volume fluid.
All four nights in the hospital were quite sleepless with all the potty times. They did get slightly easier as the third night Jemma switched from leaky pull-ups to absorbent diapers, and the fourth night she began using the potty chair. The chair allowed me to pick her up from the bed and set her on the potty, instead of unplugging her iv machines, and walking across the room to use the toilet. She pees in her sleep as soon as she is put on the toilet. I know it doesn't sound like much, but it makes a huge difference at 2:00, 3:00, 4:00 and then 5:00 in the morning.
Our new therapy schedule repeats every two weeks for eight weeks. If everything goes as planned we should spend four days at home, one morning in the hospital for a blood check, four more days at home then five days in the hospital.
Methotrexate is the primary chemotherapy drug involved in this phase of treatment. It attacks mucus producing cells and can cause sores in the digestive tract from the mouth to the anus. It also causes nausea, decreased appetite and makes food taste odd. Jemma has already experienced some of these side effects.
The third morning in the hospital she ate 1/2 banana for breakfast and a clementine for lunch. I was happy when she ate a healthy portion of oatmeal for dinner. Now that she is home she wants to eat very bland food. She has requested millet, fruit, toast, rice, and beans while refusing some of her favorites such as milk and ground beef.
On another note, my husband and I were both lucky enough to come from super clean, hard working mothers who love to spend time with their grandchildren. It was very nice to return Sunday morning to a squeaky clean house, lunch in the oven, and no pressing work to do. My husband and mother-in-law spent the morning cleaning to prepare for Jemma's arrival. (I'm starting to get used to living in a super clean house and I really like it.)