Jemma is still on a break from chemotherapy. Her leukocytes are only at 900 and must be above 2000 to continue. People with healthy immune systems have leukocytes in the range of 5000 to 14500. This means she continues to be very susceptable to infection. Despite this fact she seems to feel great. Caring for a sick child like this is very odd. She seems so healthy and normal, yet looking at her nearly bald head, black and blue marks and scared neck I'm constantly reminded she is not.
We are now starting to get into a routine. School has begun and keeps us busy all morning and often into the afternoons. The older kids do approximately 80% of their schoolwork on their own which leaves me time to work with Jemma or bring her to the hospital. She is learning very fast. I showed her how to add two digit numbers with carrying once and she easily completed six more problems.
My husband does an awesome job of cooking lunch. We are eating very well. He makes bratwurst, lentils, enchilladas, hamburgers and takes special requests. This is something I hope continues for a long time whether Jemma is sick or not.
Unfortunately, our routine is likely to change soon. Other parents of children with Leukemia say that as soon as you
get a routine everything changes. Tomorrow we will make our third trip of the week to the hospital for another blood test. Then we will know if chemotherapy can continue or if we will have to wait a few more days.