I've been writing down some of the questions Jemma has been asking and I wanted to share them with you.
What color are birds eyes?
How do nurses stay awake at night?
Why do Germans have big hands?
Do clowns tape red stuff to their heads to make their hair funny?
Will they have to sew up the hole in my chest?
Do spiders bite?
What did the doctor say about giving me another iv during my brain scan?
Do I have any appointments tomorrow?
Will the art teacher come tomorrow?
Do we need to buy a microwave so you can make my mouthwash at home?
I love kid questions and should write them down more often.
Today she had a brain scan. I spend a lot of time with her and was pretty sure there was nothing wrong with her brain. She has learned to read here in the hospital and is getting good at addition as we have been playing a lot of adding war. My assumption was proven correct as the results of her brain scan showed that everything is normal.
Today Jemma has had a lot of leg pain which is very common for children going through Leukemia treatment. Unfortunately it makes her walk with a limp and hurts when she dances and jumps.
Tomorrow Jemma has a Lumbar puncture and bone marrow withdraw in the morning. Then hopefully we will go home. When we get there several things will change. It seems a bit like bringing home a new baby. Here are some of the changes.
Food: no raw nuts, no raw cheese, all meat must be well cooked, fruits and veggies must be well washed, all spices must be cooked, and no eating any Imbiss (fast food or festival) stands
Compost cannot sit in the house
All towels must be changed daily
We must use lots of hand sanitizer
Tea must be cooked, not just a bag and hot water
We can't have plants or pets in the house
No going to the swimming pool
No contact with anyone who is sick; cold, fever, runny nose, vomiting, diarrhea, sore throat
No going anywhere where there are lots of people or germs for about 6 months:
No kindergarten (I still need to talk to the director about this)
No dance class (I still need to talk to the teachers about this)
No grocery stores, malls, post offices, buses, .....errands...... public places
Basically she can go home and to the hospital, and the less contact she has with people the better for her health. I'm glad I homeschool and she is so young. I think if she were older these changes would be more difficult.
She can go to the history co-op some of the time since it is an activity in a home with a small number of children. Her blood will be checked two or three times per week and if her immune system is strong enough she will be allowed to go. Of course this assumes she will not be at the hospital for an appointment.