Friday, June 29, 2012

Leukemia - Upcoming Treatment Plan

It has been about two weeks since Jemma was diagnosed with Leukemia. Now I'm beginning to understand the impact that this disease will have on my family. As I mentioned earlier she is at the beginning of a 2-3 year treatment plan. I recently had a chat with the doctor to discuss Jemma's treatment after we leave the hosital. Here is my summary of her upcoming treatment as I understand it now.

  
Current Treatment (know as protocol 1A) approximately June 18 - July 22
35 days of hospitalization
Jemma receives 5 lumbar punctures, 3 bone marrow withdraws, steroids and chemo plus other medications such as antibiotics

Protocol 1B approximately July 23 - Aug 20
4 weeks in duration
2 overnight stays at the hospital
hospital visits 4 mornings per week
Jemma receives 2 lumbar punctures and chemo plus other medications

Protocol M approximately Aug 21 - Oct 15
8 weeks in duration
3 overnight stays at the hospital ever other week
Jemma receives 4 lumbar punctures and chemo plus other medications

Protocol IIA approximately Oct 16 - Nov 11
4 weeks in duration

2 full day doctors visit per week
Jemma receives lumbar punctures, steroids, chemo and other meds

Protocol IIB approximately Nov 12- Dec 4
3 weeks in duration

2 overnights at the hospital
hospital visits 4 mornings per week
Jemma receives lumbar punctures, chemo and other meds

Maintenance - 1.5 to 2.5 years
chemo pills at home
blood checks at the hospital once per week
other meds?

The above schedule assumes all goes well. The chemo will destroy her immune system and she will be very vulnerable to illness. If she has a fever she will need to be in the Oncology ward within 1 hour and hospitalized immediately. I will have to take her temperature every morning and evening just to check.

The schedule above does not include the numerous checks she had last week to determine how all her systems and organs function. The ear/nose/throat doctor said we would be back in four weeks. I would assume it is the same with all the others. She will have more of these checks, but I'm not yet sure how frequently; kidneys, brain, eyes, nose, throat, heart, and probably a few I forgot.

2 comments:

  1. WOW what a schedule for the whole family as it will affect everyone. I am so glad it looks like you find a great hospital that knows what it is doing. Is it far from your home?

    ReplyDelete
    Replies
    1. The hospital is a 40 minute drive from the house. I will be buying lots of gas and getting to know the way quite well.

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