Saturday, June 30, 2012

Leukemia - How is Jemma? - Day 13

Today Jemma and I learned how to play two new German games.

The first one called Zicke Zacke Huhnerkacke, is a fun variation of memory. The goal is to be the first player to fill your chicken with four tail feathers. Tail feathers are earned when you jump over another person's hen. To move around the circle of eggs players must flip over the octogon shaped card in the middle with a picture matching the picture on the next egg. If the picture matches, the hen moves and the player gets another turn. Guess who won. - Let's just say I'm pretty sure we will play this game again tomorrow.

The second game we played, called Ticketack, is a game which introduces the concept of telling time. The goal is to be the first player to get rid of all your cards. Cards are played to advance the coo-coo around the clock so he reaches the time shown on the clock. This game was ok, but I don't think Jemma will want to play it again.

These are the pills Jemma had to take for breakfast. There are six in total, but only four different medications. I took this picture because I am still in shock that my healthy little girl requires so many medications. The blue and white pill is diflucan and taken to prevent fungus infections each Saturday and Sunday. The yellow pill is partozolzo and is to protect her stomach from all the medications she has to take. The 1/2 and 1/4 pills are both steroids. She takes these several times per day as part of her current treatment. The two white pills are antibiotics she takes on Saturdays and Sundays to prevent pneumonia. These were only her breakfast pills. She had more at lunch and dinner.

Perhaps all the medications and her Leukemia is the reason she looked like this for several hours this morning. She just didn't have the energy to get out of bed.

Luckily she got an energy boost in the afternoon. Excited by a visit from some friends and daddy, she went outside for another bike ride. The bike ride wore her out and she sat, played and ate for the rest of the day.


When someone close to you is in the hospital I think the felling of helplessness is very common. What is most desired is to be able to cure or speed up the healing process to the ill or injured person. Unfortunately all too often, and in Jemma's case this is an unobtainable goal. For her, the treatment plan is very well laid out and now must be followed. No matter what we want or do, we are not able to speed up this process. Almost everyone I know and even people I don't know have offered us help. Fortunately what we can do is make the journey through treatment easier for Jemma, and we are so lucky because help comes in many forms. We have received meals, visitors, postcards, get well cards, well wishes, gifts, visitors, medical consultations and help caring for our older two children. Despite this, three of the people that are helping the most expressed feelings of helplessness today. To those three people and all the rest of you who share this emotion, please don't be so hard on yourselves. You are helping, and Jemma is getting better. Unfortunately we must be patient while she moves through her treatment plan. Thank you all very much for all the help you have given us. It truely does help.

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